Introduction and Objective: Evidence-based pediatric psychosocial type 1 diabetes (T1D) care improves child (glycemic levels, diabetes distress) and family (conflict) health outcomes. However, few intervention studies have included substantial proportions of African American or low income families of any race. This community-engaged study aimed to identify strategies to increase engagement of these families in T1D psychosocial intervention research.Methods: Adolescents with T1D (n=10; MAge=14.8±1.6 years, Female=60%, African American=60%, White=30%, >1 race=10%, LatinX=0%, public/no insurance=70%) and their caregivers (n=10; MAge=44.8±6.2 years, Female=90%, African American=60%, White=30%, Asian=10%, LatinX=0%) were recruited from one mid-Atlantic children’s hospital. Four cohorts of adolescent-caregiver dyads completed a series of two focus groups (2 to 3 dyads per cohort) guided by semi-structured interview guides. Each focus group was recorded and analyzed using a rapid analysis approach.Results: Most teens and caregivers expressed interest in participating in T1D psychosocial intervention research and also identified similar multi-level strategies to increase participation, such as those related to logistics (evening, virtual visits), those specific to the intervention (length, target), who should invite participation (T1D providers if nonjudgemental), when/where should families be invited (in-clinic, evening phone call or text), and level of trust in researcher(s). Ways to improve researcher trustworthiness were noteworthy (share own expertise/reason to do research/reason for eligibility criteria, honest, genuine, personable).Conclusion: This foundational knowledge is critical to advancing inclusive T1D research and has potential to improve equity in the psychosocial intervention evidence base.
J. Price: None. C. Yang: None. J.A. Deatrick: None. C. Thomas: None. I. Rogers: None. M. Rogers: None. L. Rogers: None. A. Byrne: None. O. Byrne: None. M. DeEmedio: None. A. Gannon: None. C.M. Cammarata: None. A. Butler: None. K. Shoe: None. A. Kazak: None.
National Institute of General Medical Sciences (P20GM144270)
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