523-P: Seeking Methods to Engage Emerging Adults (EAs) with Type 1 Diabetes (T1D) in Diabetes Self-Management Education and Support (DSMES)—A Human-Centered Design Approach

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Introduction and Objective: DSMES is considered a cornerstone of diabetes care. EAs with T1D are reported to have alarmingly low DSMES participation rates yet doing most of their self-care. In its present form, DSMES has been cited for not meeting EAs’ needs. Our objective was to discover factors affecting DSMES engagement and use a collaborative approach to build a DSMES intervention considerate of factors important to EAs with T1D.Methods: EAs with T1D (n=32;18-35y, 56% female, 97% White Non-Hispanic, residing in 4 states) participated in semi-structured interviews (n=22) and a design sprint (n=11), an intervention co-design process grounded in human-centered design. Transcribed interviews were coded using an inductively developed codebook for content and thematic analyses. Design sprint sessions were summarized.Results: Themes about factors important to engaging EAs in DSMES were identified: 1.Continuity in care, particularly interpersonal relationships with T1D care team. 2.Empathetic interactions with diabetes care and education specialists (DCESs) who demonstrate an understanding of real-life experiences of EAs. Several EAs referred to a DCES with T1D lived experience. 3.Person-centered education tailored to issues relevant to EA and life stage. 4.DSMES emphasis on how to transfer from pediatric to adult care. 5.Peer support; EAs described desire to connect with other EAs with T1D. In the design sprint, EAs advised tactics to address these factors, designing a DSMES program in which a DCES who conveyed T1D lived experience would guide interactive group sessions on topics selected by each group, from which EAs would emerge with concrete T1D care goals and ongoing access to relevant DSMES digital resources.Conclusion: Findings provide insight into what EAs with T1D desire from DSMES. Designing DSMES programs considerate of user feedback may improve DSMES participation by EAs and, in turn, T1D outcomes.

Disclosure

J.S. Krall: Research Support; Sanofi, Becton, Dickinson and Company. M. Hamm: Research Support; Pfizer Inc. L. Funair: Other Relationship; Medtronic, Insulet Corporation, Beta Bionics, Inc. F. Cameron: Research Support; Pfizer Inc. J. Ng: Research Support; Sanofi-Aventis U.S. I. Libman: None. L.M. Siminerio: None.

Funding

National Institutes of Diabetes and Digestive and Kidney Diseases (5R34DK136020)



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